Hello, All I can say is I'm tired! This past week has given me so much stress. I feel like we are regulars at Children's ER. Since I last updated Avery has been on one more ambulance ride, and two more visits to the ER. I'm going to keep this short because my throbbing head can't take much right now. Saturday she bumped the back of her head on her headboard laying down. Her neck muscles are very week from surgery and when she goes back...she goes back. Well after watching her for about 15 minutes she complained of a headache. So off to Children's we went (me, Lily, and Avery). Tom was at the store getting Avery's birthday cake for her party later in the day. At the exit before Hudson she said she had tingles in her arms. I freeked...thinking TIA/Stroke symptom... so we got off in Hudson and went to the Hudson Hospital and the ambulance brought her to Children's in St. Paul. After seeing her neurologist and observing for two hours we went home. Her party was still on! FYI: Tingles in both arms is not alarming for stroke just possible hyper ventilating. duh!! Then she got tingles again Sunday night the neurologist said to just warm her up with a bath and get her to bed. Monday she bumped her head on the counter picking up candy from the floor. Nice...she has bumped her head more in the past three days then the past five months. A rash on her cheeks started. I emailed doctors. They did not seem too concerned nor was I. Tues...Nothing! Thank You Mrs. Selleck for the pizza, cookies and for visiting Avery. Avery enjoyed your visit. It was a great day. Wednesday Miss Larsen came over around 10 to tutor Avery. Avery was very excited to see her and always loves doing home work with her. However, Avery just wanted to nap and then said her head hurt. I was worried. She had seemed very lethargic and the head hurting thing I just did not like. We seen her team of doctors at the ER/ED they did a CT, looked at the rash and took blood. Everything is the same with the subdural hematoma on the CT scan. The new meds she is on for seizures could be causing her to be more sleepy, giving her speech problems, and causing her to be off balance. All things I have noticed and feel uncomfortable about. Avery just has not gotten back to her baseline from before last Monday. She has so much going on and it is confusing to say the least. Thank You Jennifer for staying with Lily today! One day at a time! I did talk to Boston today and the angiography is scheduled for May 15th. We will meet with Dr. Scott the day before. At least we are finally doing something about the bad arteries. We thank you for your continued prayers for Avery. We appreciate your support. Thank you again to everyone who helped make Avery's birthday so special. Positive thoughts and prayers! Team brAvery