Team brAvery Benefit at Mancini's

Tuesday, January 29, 2008

MIRICLES DO HAPPEN!
Here are the facts.
Avery diagnosed May 19, 2007 with anaplastic medulloblastoma brain tumor with spread to her spine and brain. She also was diagnosed with leptomenigeal disease to her CNS fluid or protective coating on her brain. Only 1% of medulloblastoma is this aggressive anaplastic subtype putting her in high risk with a less than 50 % chance of beating this nasty cancer. After 30 days of chemo then high dose external beam radiation to her brain and spine. One round of induction chemo, two rounds on high dose chemo with stem cell rescue, countless blood transfusions, two months of hospital stays, five surgerys, and millions of prayers Avery is in remission!
Dr Wetmore reports that the tumors and leptomenigeal disease have melted away. She was extremely surprized by the results. I know the radiation and chemo played a part in her healing but I know in my heart the prayers she received daily from all of you were what made remission possible. Thank You ...Thank You...Thank You!
Next we do not want this to relapse so I will be talking to Dr's. Bendel and Wetmore to discuss a non toxic plan to keep this nasty cancer from coming back. Avery will be able to heal and be a kid again..That is so exciting for us. Avery does not really get how important this day is...We are going to have a silly string party tonight and take everything in.
Thank You for the Prayers and support this past eight months! We are truly blessed! God performed a miracle in healing Avery! WOW! Thank You God! Love, Team brAvery!

Monday, January 28, 2008

Having MRI ! Are you Praying for Avery?

Good morning, Avery is back at the scan. They got her in late but everything is on it's way. Avery was brave and did not have any problems. A little scared and a couple tears. Thats our brAvery! Update: Avery came out of anesthesia well. Crying a little and very mad. Her throat hurts bad. She ate 3 freezes to help make it feel better. They did counts before she went under. Platelets are at 45,000 and Red at 8.5. No transfusion! Yeah! Her platelets went up a bit on their own! She is doing well. We had to stop at Walgreens on the way home. She deserved and earned a gift. $60 dollars later and way to many stickers. Tonight we are going to hang-out and try not to think about things. We are so nervous and scared. In our heart we believe things will go our way tomorrow. I feel light headed and my GI system has had better day's. Tomorrow I plan on having some help for anxiety with Ativan. If I don't I probably will not make it out of the house. BREATH! Thank you for the beautiful postings today and all the prayers. We are so lucky to have such wonderful friends and family. Thank you for being here for us. None of you signed up for it and I'm sure it has been hard on many of you too. Thank You for staying with us. Your support means the world to us! I had to tell you about church yesterday. Tom and I were sincerely touched by Pastor Neuman. A few members and us had a circle prayer for Avery, led by Pastor Neuman. It felt so Awesome that people cared enough to put this together. Thank you Jill. Everyone touched Avery, the Pastor put oil on her for head and we prayed. Pastor Neuman said some great things. In the end he gave Avery his holding cross. He holds this cross all the time during his sermon. He told her when she needed strength to hold it tight and ask God for help. I nearly lost it. She brought it with her to the MRI and held it before she went back. Thank you Trinity and especially Pastor Neuman for the beautiful jester. Now we wait! The scan should be done in about 3 hours. If you have time please say a prayer for Avery. PLEASE PRAY FOR CLEAR SCANS AND FOR AVERY'S HEALTH TO RETURN TO NORMAL SO SHE CAN BE A KID AGAIN! LORD HEAR OUR PRAYERS! Love Team brAvery! http://www.teambraverys.blogspot.com/ Check out the new pictures!

Friday, January 25, 2008

Awaiting Counts!

Good Morning! The blood would not draw from Avery's hickman so we are waiting for the TPA to unblock or unclog the line. We tried everything...just short of holding Avery upside down by her feet. Five minutes to go and we will try again. Tom's sister and niece got into a car accident last night. Everyone is fine but the truck. Thank God! We hope Mary and Frankie are healing and feeling well. Yeah...The TPA worked we just got blood. Now we will wait for the results to see if she will need red or platelets today. Thank You for the positive thoughts and prayers. Results are back.....She needs nothing! Platelets are at 39,000 and her hemoglobin is at 8.6. Hopefully this is a trend and her bone marrow is starting to rebound! Avery is excited to get the heck out of the clinic. Avery adores her nurses but she would rather not be here! Off to home we go!!! I will spare you my nerves this weekend and will update on Monday after her scan. Remember we will not find out results until after our appointment with Dr. Wetmore on Tuesday. Our plans for this weekend... Friday - Go to the oncology groups party in St. Paul Saturday- Go to cousin Jared and Joseph's birthday party Sunday- Go to church asking God for his healing touch on Avery. We need him to give Avery an amazing miracle. Please help us ask God for his help in healing Avery too. The more people praying for Avery the better the chance of him hearing us. I know you all understand how important this is to us. We thank you from the bottom of our hearts for your continued support and we truly could not get through this with out each of you.
PLEASE PRAY AND ASK THE LORD HEAR OUR PRAYERS FOR AVERY! Love Team brAvery!

Thursday, January 24, 2008

I am sooo tired. I promise to upload photos from school and the Xcel. Avery had a blast. She had so much fun being at school and cried when it was time for us to leave. That broke my heart. She want's to be a kid... run around and be silly. I will post more tomorrow. Since I took so much time with the last message that I just lost and my body is telling me to sleep. Lily kept me up last night and I'm sad tonight. Please pray for Isaac's family. Isaac went to heaven today. To many kids going to heaven. Love your children today, spend time with them and be kind to them when they are driving you nuts. MRI just four short day's away. Please put Avery on your church prayer request and tell everyone you know to pray for her too. Please pray for Avery's health to return and no cancer in her body and that the MRI on Monday will show no evidence of disease. Thank you so much! The prayers and positive thoughts mean so much. Good Night