Team brAvery Benefit at Mancini's

Saturday, March 8, 2008

Things are going well in New York City!

Hello, Avery had her first MRI without sedation today at 5:00pm. She continues to amaze me! She did so Awesome laying still for 45 minutes. WOW! Today was the spine and Monday will be the brain. They want a baseline before the I3F8 treatment starts. I am so proud of her for getting through this without sedation. It is so hard on her to have the breathing tube down her throat. She said it was hard to lay in the tube so still for so long but was better than having the tube. Yeah! We had a very special visitor today. Rich from team brAvery Philadelphia! He is in town for a meeting and could not miss this opportunity to meet Avery. Avery thought he was soooo nice! Rich and his son Anderson will be coming out for Avery's benefit in May. Avery is excited to show Anderson around the barn. Thank You Rich for visiting us today!! Tonight Lily and Tom stopped by the new TSC in Prescott. He took photos of the baby bunny's and emailed them to us. Guess who could not stop talking about bunny's? " Well Mom... which one do you think I should get the black and white one or the orange one?" I think someone thinks she is getting another bunny. Avery loves animals just like her Mom. Avery would like to say Thank You to everyone for the cards. She asked to go check the mail only 6 times today! She feels very important when she gets mail. Thank you to Grandma and Grandpa G and Uncle Pogie and Auntie Judy for the presents. Tomorrow Avery would like to do some shopping. Weather permitting. I'd rather internet shop! Also on Saturday mornings they have breakfast for the kids. Tonight they had a beach party. We only lasted for a slice of pizza then it was time for bed. Speaking of bed I think it's time for me to hit the hay! Thank you all for the wonderful support you continue to give us. Please keep Avery in your daily prayers. Please pray these MRI's are clean and she is still disease free. Please pray for her strength to get through the tests and treatments. We appreciate every prayer said for Avery and love to hear your words of encouragement. Positive thoughts and prayers! Love, Team brAvery

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